There has been a lot of life packed into the last seven days. Ronin had open-heart surgery on Monday, which lasted most of the day.
**Thank you to everyone praying with us on that day. Just wanted to share this little side note: Just as Ronin’s surgery was starting, the lights in our wing of the hospital flickered for several seconds and then ALL TURNED ON.
Everywhere was FLOODED WITH LIGHT – even the high-beam surgical lights in every room had turned on. There wasn’t an outage and the generators hadn’t turned on, so all of the monitors and machinery for the babies never stopped. No one working at the hospital had an explanation for what had happened, but it definitely caused a buzz.**
Everything seemed great when Ronin came back from the operating room. The surgeon met with Ray and me, and was very pleased with what repairs he was able to do. (Considering that Ronin’s heart is the size of a walnut, it’s so impressive what was done.) Ronin’s stats looked amazing and for the first time in his life he had 100% blood oxygen saturations. When Ray and I saw him post-op, he was still asleep and on a ventilator.
Something started changing on Wednesday, and by Thursday the doctors identified that Ronin was having an obstruction in his heart. More echocardiograms and CT scans were ordered, and the doctors noticed a fold in his pulmonary artery. The fold wasn’t there after his heart was repaired and imagery was taken, so something probably happened when his chest was closed up.
On Friday morning the doctors removed a chest drainage tube, thinking that it might have been causing the issue. Although there was some debate over whether or not it fixed everything, our cardiologist wasn’t convinced that the drainage tube was the only culprit. She’s been following Ronin since before he was born, and has been there to hug me through plenty of tearful conversations. So when she’s advising that Ronin will need his chest reopened to fix the fold causing the blockage, I know that she’s thinking of what’s best for my son’s overall well-being.
Today is Sunday (Christmas Eve), and we’re waiting for the second surgery to be scheduled. During the week Ronin’s body temperature has fluctuated between fever and hypothermia, which could be a sign that he’s sick. His first 48-hour blood culture test came back all negative, but a second test was started yesterday to be completely sure he doesn’t have a viral infection. Him being sick would push back this next surgery, since it’d make post-op recovery very challenging.
I’m sad but I’m doing well.
By now I’ve learned to be comfortable with the uncertainty of waiting, but I would have wished for Ronin’s first Christmas to look a little different. I know he’s in good Hands (and hands). And I feel incredibly thankful and blessed having medical staff advocating for Ronin’s best.
These verses have been put in front of me multiple times in the last few days:
“Oh, the depth of the riches of the wisdom and knowledge of God! How unsearchable His judgments, and His paths beyond tracing out! Who has known the mind of the Lord? Or who has been His counselor? Who has ever given to God, that God should repay them? For from Him and through Him and for Him are all things. To Him be the glory forever! Amen.” (Romans 11:33-36)
There are no accidents and even though the circumstances haven’t been ideal, there’s been so much fruitfulness in these days. I know that God has the answers to everything happening and that He’s using every bit of it for His glory. I’m at peace through knowing that God is here with us and just pray that He continues to comfort and strengthen my little warrior.
God bless you and merry Christmas from our family of 7.